A workshop outlining some of the key principles to bear in mind when working with sensitive or restricted research, whether collected yourself or obtained from a third party source such as an NHS trust or Biobank data. Issues of confidentiality, informed consent, cybersecurity and data management will be covered. Examples of scenarios or concerns drawn from the research of participants are particularly welcome. The role of support services at Oxford will also be outlined and in particular the role of the Bodleian Data Librarian who will lead the session. Follow up consultations with the Data librarian or other subject consultants are also offered.
The session will cover:
Key best practice principles when working with sensitive or restricted research data – Issues around creating original data in the Sciences and Medical Sciences – Informed consent agreements – Developments in electronic lab notebook services – Issues of usage potential and reproducibility in your subject – Strengths and weaknesses of anonymization, data blurring and similar techniques – Key strategies for protecting data including encryption, embargoes, future vetting and access restrictions – The obligation put on researchers by legislation and research partners.
Intended Audience: All DPhil students and research staff in the Sciences and Medical Sciences